Guidance and resources for systems and all lymphoedema services to deliver integrated, personalised care for people affected by cancer.

TCST and the London Lymphoedema Community of Practice refreshed system level guidance for Lymphoedema in 2020. The guidance supports Integrated Care Systems (ICSs) to commission and deliver high quality personalised care for all people living with lymphoedema and those who are at risk of developing lymphoedema as a consequence of their cancer and its treatment.

Lymphoedema – the case for change

Since the publication of TCST’s original guidance in 2016, there has been an increase in the lymphoedema workforce in north east, south east and south west London. In contrast, there has been a decrease in staffing in north central and north west London, with the latter now being identified as a top priority for the development of lymphoedema services.

The revised guidance:

  • provides a high-level overview of lymphoedema and the key strategic challenges;
  • identifies how services are currently commissioned across London, identifying the gaps in services and workforce and outlines where improvements are needed;
  • clearly sets out what a good service looks like, how it can be evaluated and what it could achieve in practice;
  • identifies the key education and training needs for the wider workforce and how these can be addressed;
  • outlines how the Guidance should be implemented and evaluated.

Guidance and resources

Acknowledgement: This MDS spreadsheet has been adapted from the work done by Kay Morris, Ireland and the BLS MDS form.

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Conferences, awards and publications

TCST’s lymphoedema guidance has been shared across the UK and was adapted by the National Lymphoedema Partnership for their national commissioning guidance. The team has presented at conferences, received a highly commended award from the Healthcare Transformation Awards and has published a peer reviewed journal article. These are shown below:

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